Addison continues to do well with the diurectics, getting rid of her extra fluids, which is really helping her out with her oxygen. She continues to be on the low flow system and has now moved down to a level of 35. The way that we understand it is, Addison is on 100% oxygen with this system but she is only getting about .35 percent pressure from it. The nurses advise that they will continue to attempt to move Addison's amounts down slowly until she reaches a level of 0-1, which means she is basically off the oxygen. We have learned through this whole process that Addison really has to move slow, if we go to fast for her she bottoms out and we end up setting her back, which is not good. We will ween her down on the oxygen
On top of the oxygen, we continue to work on Addison's feeds. She continues to be on a modified "bolus" type feed which means that she gets a certain amount of her food over so many hours. She is currently receiving a 4 hour volume of food in 2 hours time, and then they leave her off her food pump for 2 hours to build up her hunger. This will progress so that Addison will then have the volume of her food decreased and the volume of the food then put into her tummy over 3 hours and then on down until she gets the volume of her food over 1/2 an hour. The volume of food she is getting now is to high to put in over 3 hours so they have to decrease it, her little tummy and reflux could not handle that amount. Way to stressful for her. So we decrease the amount and see how she handles it and then move the hours down as we go so she gets more in her tummy at feeding time and is off the pumps longer to build up her hunger. When this gets
On Sunday we got a great surprise.
So to everyone we wish you a Happy New Year and may 2009 bring joy and many blessings to our friends and families, including those that are on a journey along side us with their little miracles in the NICU's. Thank you to everyone for all of your love and support for us and little Addison, we are truly blessed with incredible friends and family. We could not have made it this far without each and everyone of you behind us. We have been blessed by help from strangers we have met along the way and whom we hope to build stronger friendships with, as they have shown us what great heart is and the spirit of giving and true kindness. To the loves of my life; Greg and Addison I thank you both for being in my life and bringing me such joy and happiness each day. You are my world and I look forward to what 2009 and the years to come will bring our family. From the bottom of my heart I love you both. HAPPY NEW YEAR!!!!!

2 comments:
Bonne et MERVEILLEUSE année mes très chers amis.
After reading the few days of blogs that we missed, wiping the tears and shnots off our faces, we can finally sit here and write to you guys.
Congrats on your move to the other unit!!! I remember when we came to see you at the hospital, you were telling me that back behind your room was where you would end up being if all went well with Addy. And here you are!
Love all her little outfits and seeing her with a 'suce' or in Greg's arms. Just makes me so excited thinking that it's just a few more steps before she is home.
From the bottom of our hearts to the 3 of you, we thank YOU for allowing us to live such profound joys with you. We thank you for opening our minds and hearts so we can understand what goes on in other peoples lives. So we can appreciated our lives and help others when we can. You guys have helped us forget ourselves and think about others. I am more the certain that baby Addy's experience is an eye opener to many of us.
Thank you for opening your hearts to us and for sharing your little miracle with us.
xxxxx
Scott & Mo
It is great to hear that Addison has been moved. We are so thrilled for you guys. We wish you well in the new year God Bless your beautiful family.
Marian and family
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